Food glorious food

Living in the shadow of an RRMS diagnosis, I feel as if there is little within my control. 

But, I can control what I eat and drink. Coffee – no more than 3 a day. I’ve been gluten free for 8 years which I do credit for the length between relapses.

Now I am low-sat fat. This means no fat milk in my coffee. All fat trimmed from lean cuts of meat. No chocolate, or chips. No more peanut butter on hot toast. 

But, I couldn’t be happier. There is enough evidence out there to suggest that even if diet isn’t a cure, it does no harm and may be effective management.

So today, I bought 20 kilos of carrots, 3 kilos oranges, 2 bunches each of celery and beetroot. With left over oranges, mandarins and apples, juiced up 5 liters of juice to have each morning with my fish oil, vitamin d, iron, cranberry and glucomsomine.

breakfast isn’t my thing, but juice and coffee is. I did my weekly grocery shop. We have lean pork and veal mince for a bolanaise sauce with some shredded spinach and mushrooms. Lean topside steak to have in a stir fry with roasted capsicums and other veggies. A chicken to have in a curry chicken soup with rice.

And each morning I throw into my handbag an apple, mandarin, and banana.

not purely Swank, Jelanik, or Wahl. But something I can live with, today. School seems divided on meat or no meat. I have chosen lean meat, with fish once or twice a week. School is also divided on nuts. I have a dish of nuts and dried cranberries on my desk at work. Better than chips or chocolate. And for days when lunch is not an option, they keep me going.

we are all on different journeys. I don’t know how different mine would have been if I hadn’t gone gluten free, or if I didn’t have chips and chocolate as my go to foods with anything else that was fried and gluten free. Would I have had my last relapse?

it has been 6 months. I am pushing for another six months. I will share with you my good, the bad and the naughty so you can judge. By the way, wine is now my go to food!

 

Advertisements

Today is just another day on a journey that takes a lifetime

Insomnia and fatigue. The former started 12 years ago, on and off. Times of stress. Times when my brain just needed those hours in the middle of the night to process.

The fatigue, since I can’t remember when. I remember sleeping most days, but blaming it on partying all night. Days organising a dinner party with a nana nap in the afternoon. Studying, well a couple of hours at the books, an hour with my pillow.

when did this all begin? At what point should I have seen the symptoms?

In 2004 I was pregnant. And exhausted. Terribly so. Blood test confirmed anemia and b12 deficiency. But was it more? It was only months after an optic neuritis attack.

In 2005, with 3 kids, again I was tired. Terribly, terribly so. Unable to get out of bed some days. Was this a sign? Of looming MS  or just being a mum?

I can’t remember a time when I have had energy. To burn. Adrenalin is easy. Create the deadline, grab and harness the energy. But once the project is delivered, exhaustion.

i love my husband and family. I desperately want to show them how much. Give them the energy they deserve.

not really the blog I planned. But from my heart.

Decisions, decisions…The Curmudgeon must decide.

Good luck with whatever decision. May it work for you both.

Doggonedmysteries

     Spent our afternoon sitting in the neurologist’s office.  It looks as though they are finally going to change The Curmudgeon from Avonex to something else.  The Avonex has prevented any further damage but his body’s reaction to it is getting worse as time goes on.

     He will give himself his injection on a Monday night.  Then for the next four days he’s in rotten shape, having trouble walking, and in general his quality of life sucks big time.  This wasn’t working for us.

     He has three choices, one of which is a pill taken twice a day.  “Tecfidera™ is an oral therapy contained in capsules taken two times per
day. Tecfidera, formerly known as BG-12, is dimethyl fumarate, a
formulation that was developed specifically for use by people with
multiple sclerosis.”  He is hoping this is what he gets.  Only problem is, the main side effect which…

View original post 88 more words

And here we go again, it is 2am

I just posted about insomnia. And here it is, 2 am and I am wide awake, with a clearer brain than I have during daylight hours.

so, is this low fat the reason? Is my body waking at 2 am most mornings because my sugar levelah have crashed. Is my sudden need for fruit, jam on toast and glass of bubbles, really my body and brain crying out for either fat or sugar to keep my brain functioning?

Type A personality that I sever need a solution. So, later today I will have breakfast – an unnatural time wasting occurrence for me. It will either have egg or nuts. I will also drink 600ml of water as I take those stupid pills. I will eat something at noonish. And have a bag of nuts and dried fruit in my bag to snack on. And, I will only have one glass of wine over the weekend.

Today’s foggy brain was an 8 out of ten. Kids were telling me about their day and I have no ideas what they said. If I didn’t take notes of a conversation, it was lost. I couldn’t recall receiving an important email, but once resent it was all clear. I have had one night without waking up this week. Haven’t had breakfast or lunch once. Barely drunk any water.

ill monitor progress here, mainly because if I don’t, I will probably forget. Goodnight.