Just came out to my sister. She asked.

My sister just rang. We spoke for an hour or so. She commented on how much weight I had lost (thanks for noticing). she asked if it was diet or gym, I said had health issues earlier this year and gave up sat fat. Then I changed the subject – tried on my wedding dress from 15 years ago and it is too big. Eventually there was silence and she asked, twice. So I told her. I have multiple sclerosis. Not what she was expecting.

i am having a good day. So I said all the right things and comforted her. Because what I have learnt, rightly or wrongly, it isn’t about us. Not about our grief, anger or denial. It is about ‘them’. Comforting them. Giving information to them. 

I am sure that right now my sister is telling her husband and together they are googling rrms optic neuritis and multiple sclerosis. I gave her permission to ring and ask questions, because if I don’t know the answers, I probably should.

Multiple sclerosis is a long game, and a lonely game. For those of us in the game, and for our families stuck on the sidelines cheering.

Advertisements

MS? What MS? Living in Denial

Slow down. Remove stress from your life. Simplify. Chillax

Medical and friend advice is that stress makes MS worse.

So, whether as a last attempt at a happy career or as an act prof desperate denial, yesterday I had a job interview. If successful, challenge, long hours and complete job satisfaction await.

dumb? Stupid? Legacy?