Food glorious food

Living in the shadow of an RRMS diagnosis, I feel as if there is little within my control. 

But, I can control what I eat and drink. Coffee – no more than 3 a day. I’ve been gluten free for 8 years which I do credit for the length between relapses.

Now I am low-sat fat. This means no fat milk in my coffee. All fat trimmed from lean cuts of meat. No chocolate, or chips. No more peanut butter on hot toast. 

But, I couldn’t be happier. There is enough evidence out there to suggest that even if diet isn’t a cure, it does no harm and may be effective management.

So today, I bought 20 kilos of carrots, 3 kilos oranges, 2 bunches each of celery and beetroot. With left over oranges, mandarins and apples, juiced up 5 liters of juice to have each morning with my fish oil, vitamin d, iron, cranberry and glucomsomine.

breakfast isn’t my thing, but juice and coffee is. I did my weekly grocery shop. We have lean pork and veal mince for a bolanaise sauce with some shredded spinach and mushrooms. Lean topside steak to have in a stir fry with roasted capsicums and other veggies. A chicken to have in a curry chicken soup with rice.

And each morning I throw into my handbag an apple, mandarin, and banana.

not purely Swank, Jelanik, or Wahl. But something I can live with, today. School seems divided on meat or no meat. I have chosen lean meat, with fish once or twice a week. School is also divided on nuts. I have a dish of nuts and dried cranberries on my desk at work. Better than chips or chocolate. And for days when lunch is not an option, they keep me going.

we are all on different journeys. I don’t know how different mine would have been if I hadn’t gone gluten free, or if I didn’t have chips and chocolate as my go to foods with anything else that was fried and gluten free. Would I have had my last relapse?

it has been 6 months. I am pushing for another six months. I will share with you my good, the bad and the naughty so you can judge. By the way, wine is now my go to food!

 

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And here we go again, it is 2am

I just posted about insomnia. And here it is, 2 am and I am wide awake, with a clearer brain than I have during daylight hours.

so, is this low fat the reason? Is my body waking at 2 am most mornings because my sugar levelah have crashed. Is my sudden need for fruit, jam on toast and glass of bubbles, really my body and brain crying out for either fat or sugar to keep my brain functioning?

Type A personality that I sever need a solution. So, later today I will have breakfast – an unnatural time wasting occurrence for me. It will either have egg or nuts. I will also drink 600ml of water as I take those stupid pills. I will eat something at noonish. And have a bag of nuts and dried fruit in my bag to snack on. And, I will only have one glass of wine over the weekend.

Today’s foggy brain was an 8 out of ten. Kids were telling me about their day and I have no ideas what they said. If I didn’t take notes of a conversation, it was lost. I couldn’t recall receiving an important email, but once resent it was all clear. I have had one night without waking up this week. Haven’t had breakfast or lunch once. Barely drunk any water.

ill monitor progress here, mainly because if I don’t, I will probably forget. Goodnight.

Celebrating small wins – 6 months relapse free

Driving to work in heavy fog, I realised that is how my life is now, diagnosed (finally) with RRMS. Not seeing where or how bag the next bump is, how far to the next bend, or when the fog in my brain will finally lift for good.

but with 6 months since my optic neuritis, and six months since my MRI and formal diagnosis, there are some good wins. Six months relapse free. I know that isn’t much to some, ulna bragging for others. But, I will take it as a win. And I am aiming for another six months. To see Christmas tree lights with red flashing (other optic neuritis sufferers will understand).

I have taken multiple sclerosis to kick me up the proverbial in terms of looking after my health – to the extent I can. Drinking water. Taking my iron every day – the side effects are nothing to CRAB drugs so I have stopped complaining. Cranberry supplements for UTI and glucosomine for joints. And heaps of fish oil. And heaps of vitamin d. I haven’t missed a day. Oh, and SSRI to get my stress levels in check. Love that Chillax feeling.

Trying to meditate and this week, for the first time, this TYPE A personality meditated witclearer mind for a couple of minutes. Big win.

Strangely, the easiest thing to give up was saturated fat. Easy choice – chips and gravy equals wheelchair. No fat milk no butter, nuts and dried cranberries for snacking. Low fat meat a couple of times a week, chicken and fish the rest. 9 kilos lighter. Skin healthier. 

So, these first six months have been a head game. Angry, depressed, confident, anxious, relieved, scared, grateful. Looking forward to kicking butt for the next 6 months.

My Swankish Diet 8kilos in 3 months

Swankish diet was never about losing weight. It is the only control I have over this stupid disease. It wasn’t easy, giving up my beloved chips and gravy, hamburgers, nachos, cheese cheese and more cheese, and limiting red meat.

Breakfast is one or two pieces of fruit. Grab on the way out the door and eat on way to work.

Snack during the day is a cranberry and nut mix. 

Lunch is either tuna on cruskitt or a piece of grilled fish. Still dislike fish, but it is becoming a habit.

Dinner is now fish or salmon twice a week, kangaroo once a week, pork and chicken with only one or two red meat – low fat cuts such as rump. With heaps of vegetables.

Other snacks are jam on toast, cupcake.

Havent gotten around to exercise, but still 8 kilos weight loss in 3 months is a bonus. If I am going to consider cup half full, this is it.

Same life through new eyes

My life isn’t change with my MS diagnosis. But the way I view my life changed.

I take the stairs. Not because of slow lifts, but because I enjoy being able to. At work, I can chose the lifetime or chose the stairs. I feel the muscles in my legs. It feels good.

I gave up fried food. Chips and gravy. Hamburgers. I miss them. Apples, bananas, fish just aren’t the same. But giving up fried food has had a benefit. 10% body weight just gone. Waist has returned. Cheekbones rediscovered. Jeans fit. It feels good.

my brain is clear. I can read, recall, think and analyse. I don’t take it for granted. A month ago I read a page and forgot what it was as soon as the page was turned. I am loving the clarity of thought. It feels good.

Thanks to MS, I have a chance to live again. To see my life through new eyes. And that feels good.

Swank(ish) diet gets thumbs up

My conservative GP sent me to the dietician. I ‘chose’ to be gluten free and have chosen to follow some hippy diet to cure my MS.

Ignoring the judge mental undertones, I explained low sat fat to the dietician. I also explained that I will continue to eat low fat red meat due to underlying anemia. She had never heard of swank. But there was nothing wrong with fish a couple of times a wee, or eliminating sat and trans fat. The vitamins (fish oil, iron, cranberry, vitamin d) are all sensible. But she wanted to do research.

Well, for those of you sitting on the fence: there is nothing wrong with Swank. My dietician would like me to eat whole eggs (protein) and lite cheese (calcium). But eating red meat 3 times a week is fine – make it lean and make it count. Oh, and she understands that some of us have bodies that know they are intolerant (for me it is gluten) without the auto immune disease or allergy.

So, even if Swank doesn’t cure your MS, it can’t hurt. What are you waiting for. Think about what is more important, that piece of xxxx or staying out of a wheelchair.

My cup is half full(ish) even with RRMS

Most of my posts have been about my emotional ride through RRMS diagnosis. I have been sad (very sad), in denial, had a little anger at my body and definite frustration.

But today, I am feeling good. Having RRMS, and a healthy dose of stubbornness and denial, I have changed things to give myself a chance.

Lower stress.

Diet.

i have pulled back from being as involved in the local soccer club. Weeks of preseason stress relating to grading all gone.  I am culling crap in my life. Clean desk, aiming for passes instead of distinctions. Housework – well my house is patient and if I don’t get to it today, it will wait. I am also taking at least 15 minutes 3 times a week to have lunch in the sun. Gotta love that Vitamin D.

Diet – well a Swankish approach has dropped me from a big size 14 to just buying a size 10 suit! Got to be happy with that. Giving up saturated fat meant giving up hot chips, BBQ chicken, plain salted chips or corn chips, pop corn and the like. 6 kilos lighter. Drinking more water, started to replace one or two meals with seafood – which I do not like, but doing it anyway. Because of my anemia, have not and will not give up red meat. I only use low fat cuts and cut off all visible fat. Tat will be my only voluntary saturated fat.

Insomnia is still my curse, but I am practicing breathing and taking time to enjoy the life I still have. I have dropped my baby fat (my baby is now 8) and strutting new jeans.

I value life. I am going to live and love life. While I can. Not taking anything for granted. Ever again.